Malone, DM, Kropf, N.P., & Hope, L.N. (2005).  Disabilities in Late Life.  In the Wehman book - see deShur 2005

Do we know anything about the mortality rates of kids with autism?

• What is quality of life?
  • person growth 
  • independence
  • health ahppiness
  • access to services which promote quality of life
• 3 perspectives:
  • social - social welfare, formal versus informal, housing, leisure, etc...
  • psychological --> personal --> maintains productivity, independence, acceptance
    • perceptions of quality - satisfaction, well-being, competence
  • social policy - service delivery, fiscal resources
• one must consider the child's input
• abuse the freedoms?
• financial planning an issue
• support options decrease as one gets older
• who are the caregivers?
• beliefs and values are at the core as well
• increasing backlash against "public residential facilities"
  • continuum of options
  • transfer, shuffle, and relocation at issue
    • the wishes of the individual are often not considered